Slide 1

Login Form

If you have already created an account on this website, please login above. Otherwise, please enter the passphrase in the white box below to create your account.

Charities 2017 - 2018

 

Songbirds love to bring music to the community and while they do this any monies raised are donated to Charity. Each year all members of Songbirds Choir are invited to nominate a Charity for the choir to support; votes are counted at our AGM to determine our three Charities to support over the coming year.

This year the members voted for:

Myeloma logoRDA logoThe brain tumour charity logo

www.myeloma.org.uk                                          eastparkrda.org.uk                                     www.thebraintumourcharity.org

Myeloma logo

 

 

 

Registered as a charity in 1997, Myeloma UK is the only organisation in the UK focused on myeloma, a rare and incurable cancer of the plasma cells in the bone marrow. They are helping myeloma patients live longer and with a better quality of life.

How? By accelerating the discovery and development and access to new treatments, while helping patients and their families cope with everything a diagnosis of myeloma brings.

They do this by:

  • Funding a world-leading genetic research programme to discover and develop new “tailored” treatments
  • Funding a groundbreaking Clinical Trial Network that gives patients access to new life-extending drugs
  • Providing resources for healthcare professionals so that diagnosis is improved, best practice is shared and patients receive the best possible treatment and care
  • Working in partnership with decision-makers to ensure the speedy approval of new drugs, and that the NHS provides the services patients and their families need
  • Supporting patients and their families through a comprehensive range of services including our Myeloma Infoline and Patient and Family Infodays

Myeloma UK receives no government funding and relies on voluntary donations and fundraising activities; their administration and running costs are kept to an absolute minimum

The local support centre for Crawley is : Macmillan Horizon Centre, Bristol Gate, Brighton BN2 5BD

The Group meets every month and offers an opportunity to get together and share experiences as well as having guest speakers to give talks on various aspects of living with and treating blood cancers.

RDA logo

East Park RDA Group is a member group of Riding for the Disabled, and has charitable status in its own right

For more than 40 years, Riding for the Disabled has been delivering opportunities for therapy, achievement and enjoyment to people with disabilities.  Founded as a National Organisation in 1969 RDA now has over 500 Member Groups across the UK – together these Groups help 28,000 people take part in riding, carriage driving and vaulting activities.

It is based at Little Brook Equestrian Centre in Newchapel, Surrey.  During term time they run eight riding sessions per week for disabled children from local schools.  With six riders per session, they are able to give 48 young people a weekly opportunity to ride

What does RDA do?

Although RDA was set up to work mainly with people with physical disabilities, RDA Groups now work across the spectrum of disabilities, age range, social status and urban and rural environments.  The focus of their work is to ensure that each individual has the chance to derive a direct therapeutic benefit and the opportunity to achieve their personal goal (whether that be learning a very simple skill or winning a major competition).

What are the benefits?

RDA gives individuals the opportunity to:

· Reach therapeutic goals: improve muscle tone and posture, develop fine and gross motor movement
· Achieve their personal ambitions: sit on a horse for the first time, learn new skills, win a Paralympic medal
· Combat social isolation: build relationships, enjoy events and competition, develop self-confidence
· Develop life skills: improve communication, take responsibility, be a team player
· Experience the outdoors: ride in the countryside, access rural Britain
· Connect with animals: bringing positivity and optimism, adding a new element to life

 

The brain tumour charity logo

The Brain Tumour Charity is at the forefront of the fight to defeat brain tumours, making a difference every day to the lives of people with a brain tumour and their families.

They are committed to having the biggest possible impact for everyone affected by a brain tumour, to defending the most amazing part of the human body, so that the diagnosis of a brain tumour is no longer a death sentence.

They fight brain tumours on all fronts through research, awareness and support to save lives and improve quality of life.

•They fund pioneering research to find new treatments, improve understanding, increase survival rates and bring us closer to a cure.

•They raise awareness of the symptoms and effects of brain tumours, to reduce diagnosis times and make a difference every day to the lives of people with a brain tumour and their families.

•They provide support and information for anyone affected to improve quality of life.                  

What is the strategy?

The strategy has two over-riding goals, to:

  • Double survival within 10 years in the UK. Their goal is to halve the average years of life lost to a brain tumour from 20.1 to 10 years by 2025.
  • Halve the harm that brain tumours have on quality of life in the UK. Their goal is to halve the harm caused by brain tumours by 2020, from a baseline measure which we will agree with clinicians and patient groups by the end of 2015.

To achieve these goals they will focus on six key priorities over the next five years:

  • A Cure Can't Wait: Our Research Strategy to invest in forward-thinking, outcomes-orientated and patient-focused research.
  • Every patient is a research patient: making sure every patient is able to contribute to research and clinical trials.
  • Early and accurate diagnosis: working to reduce diagnosis times and improve accuracy of diagnosis.
  • Equal access to the best treatment and care: ensuring every person with a brain tumour has the same access to high quality treatment and care.
  • Improving life today: providing information and support to navigate the system and improve quality of life.
  • United in their battle to defeat brain tumours: leading and facilitating a community that works collaboratively to make change happen

Sussex Brain Tumour Support Group

Sussex Brain Tumour Support Group is open to anyone affected by a brain tumour. The group meets from 7pm-9pm on the second Tuesday of each month at The Redwood Centre, Perrymount Road, Haywards Heath